Let’s Talk about Sex and Cancer
How common are problems with sex after cancer?
• As many as 90% of patients report problems with sexual intimacy following cancer treatment, which means that this is a very prevalent problem for cancer survivors and an important subject to be talking about.
• 52% of survivors report problems with body image following treatment. This can be a result of treatment as well as a result of how people relate to their bodies after finding out that they had cancer.
• Changes in sexual intimacy can have a distressing impact on a survivor’s quality of life because sexual intimacy is an important part of a healthy and connected life.
(AVERY, NISHIMOTO, 2014; BOBER & VARELA, 2012; ROTH, CARTER & NELSON, 2010)
What makes it hard to get help?
• Sex is often a difficult topic for patients and sometimes physicians to discuss.
• Fear of rejection by a partner means that people often distance themselves and stop sharing their own thoughts and feeling about sex during and/or after treatment, which can lead to feelings of isolation and insecurity.
• Sometimes the patient/partner wants to protect their signifiant other so they avoid discussions, which leads to a breakdown in connection and communication.
The Biological Impact
of Cancer on Sexual Intimacy
How cancer changes sex
• Chemotherapy and radiation are associated with skin changes and fatigue
• Chemotherapy causes nausea, vomiting, diarrhea and hair loss, which impact feelings of attractiveness
• Medications used for treatment side effects (i.e. nausea, pain, depression, anxiety) can impact desireandability to achieve orgasm
• Surgical interventions (i.e. mastectomy, removal of reproductive organs/genitalia) can impact body image as well as physical sensitivities due to nerve damage
• Surgical removal of reproductive organs and genitalia can lead to pain, discomfort and/or a lack of sensation
• Radiation to a woman’s pelvis can result in inflammation, narrowing and/or loss of flexibility of the vaginal opening resulting in pain and discomfort( vaginal stenosis)
• Pelvic radiation can all lead to diarrhea and rectal bleeding
• Hormonal deprivation due to surgery or medication can induce menopause resulting in vaginal dryness, decrease in sexual satisfaction and loss of interest in sex
• Placement of an ostomy for urine or stool can require management during sexual activity and can impact body image
(ROTH, CARTER & NELSON, 2010)
The Psychological Impact
of Cancer on Sexual Intimacy
How cancer changes our psychology related to sex
Psychological factors can impact motivation for and enjoyment of sexual intimacy
Depression
Anxiety
Poor Coping
Decreased Self-Esteem
Changes in Body Image
The Relational Impact
of Cancer on Sexual Intimacy
Talking about sex can be hard
Doctors often wait for patients to address sexual problems
Patients wait for doctors to ask about sexual problems
Couples often lack the language to discuss sex
Other relationship factors to consider
Illness is often not an aphrodisiac
Being in a long-term relationship, aging and childbearing are also often not aphrodisiacs
Couples often cope with stressors differently
Sometimes relationships become more focused on caretaker/patient than on erotic feelings
Suffering can have different meaning for each person
The Sexual Response Cycle
The phases of the response style
Desire - motivation to engage in sexual behavior
Arousal - physical changes that increase motivation for sex
Plateau - intensification of physical arousal
Orgasm - a sudden and forceful release of sexual tension
Resolution - the body returns to baseline
(KATZ, 2009)
Why women instigate or agree to sex
To express love
To receive and share physical pleasure
To feel emotional closeness
To please her partner
To increase her own well-being
(KATZ, 2009)
Where does a woman’s sexual desire come from?
The reasons for having sex combine with physical and emotional factors resulting in sexual arousal.
Continued stimulation then allows the excitement and pleasure to build and finally leads to a desire to have sex.
Openness to one’s partner + sexual stimulation = sexual pleasure and desire for sex
Willingness comes from the experience of sexual satisfaction and non-sexual rewards
What is arousal?
Muscle tension increases
Heart rate quickens and breathing is accelerated
Skin may become flushed (blotches of redness appear on the chest and back)
Nipples become hardened or erect
Blood flow to the genitals increases, resulting in swelling of the woman's clitoris and labia minora (inner lips)
Vaginal lubrication begins
The woman's breasts become fuller and the vaginal walls begin to swell.
The sexual plateau
The changes that beganin phase 1 are intensified.
The vagina continues to swell from increased blood flow, and the vaginal walls turn a dark purple.
The woman's clitoris becomes highly sensitive (may even be painful to touch) and retracts under the clitoral hood to avoid direct stimulation from the penis.
Breathing, heart rate, and blood pressure continue to increase
Muscle spasms may begin in the feet, face, and hands
Muscle tension increases
Orgasm! What actually happens?
Involuntary muscle contractions begin
Blood pressure, heart rate, and breathing are at their highest rates, with a rapid intake of oxygen
Muscles in the feet spasm
There is a sudden, forceful release of sexual tension
In women, the muscles of the vagina contract. The uterus also undergoes rhythmic contractions
A rash, or "sex flush" may appear over the entire body
The sexual resolution
Body slowly returns to its normal level of functioning
Swollen body parts return to their previous size and color
Marked by a general sense of well-being, enhanced intimacy
Some women are capable of a rapid return to the orgasm phase with further sexual stimulation and may experience multiple orgasms
Here are some helpful links if you would like to do more reading on the sexual response cycle:
Getting Back on the Path to Sexual Intimacy
Addressing changes in body image
Body image changes are a common first challenge that patients may need to overcome.
Helpful outlets and interventions include:
Beauty focused programs such as Look Good, Feel Better
Consider boudoir photos ( for a great example visit Jenn Spain Photography on Instagram)
Look at Body Positivity classes and exercises to help you focus on what is good about your body (click here for a helpful article on body positivity)
Support groups or one-on-one discussions to connect to other survivors and share practical tips such as ways to address ostomy bags
Psychotherapy to address losses and changes in self-image
Consider decorative tattoos to enhance or cover scars or surgical sites such as breasts
Treating vaginal dryness
Water-based vaginal lubricants
Glycerin-based vaginal lubricants
Non-hormonal vaginal moisturizers
Addressing changes in vaginal health
Prescription creams for improving vaginal tissues
Vaginal DHEA (Intrarosa; by prescription)
Vaginal estrogen (by prescription)
Pelvic floor exercises (Kegels)
Click here for Kegel instructions
Use tools (if appropriate)
Overcoming pain during intercourse
Pain can be related to vaginal dryness
Use a lubricant and/or moisturizer (see links above)
Vaginal dilators can be used to improve elasticity and to break down scar tissue
visit SoulSource for information about vaginal dilation for scaring or stenosis
Receiving education from a nurse or medical professional increases success with dilation
Adding pelvic floor exercises (Kegels) may improve results of vaginal dilation (see above for tools and instructions)
There are physical therapists that specialize in vaginal rehabilitation so ask your healthcare team for referrals.
More stimulation before sexual intercourse can also help
Sex is more than intercourse
Oral sex
'“Outersex” - when a person puts a lube on their upper thighs and the penis is inserted between the thighs for stimulation
Anal sex
Manual stimulation - touching with hands
Sensual touching - massage
Masturbation
Some other strategies to try
Relaxation exercises before sex can decrease pain and increase arousal response
Masturbation is a way to reconnect with yourself sexually before involving your partner
Using sex toys to explore your own sexuality (Amazon, Pleasure Chest)
Try something new as a way to simply create movement
Know that making changes often leads to feelings of anxiety, which is a sign of growth
Intimacy and growth are both life affirming experiences
Eat and sleep well
Addressing Sex as a Couple’s Challenge
How to talk to your partner about sex
Communication is a key to resuming a healthy sex life after cancer
Focusing on connecting and touching rather than orgasm or intercourse can take the pressure off of both of you
Try to focus on “I” statements and share your feelings
Don’t try to read your partner’s mind and avoid blame
Considering couple’s therapy
Facing a life-threatening illness can have an important impact on communication related to sexual intimacy
Therapy provides a place to acknowledge and process losses that have come with cancer
If challenges focus on communication then traditional couple’s therapy would likely be the best first step
If the issues are primarily focused on changes in sexual intimacy then sex therapy is likely a better first step
If the root of the problem is unclear then seeking sex therapy is like to be helpful
What is sex therapy?
Sex therapy will focus on:
Communication around sex
Sexual positions to enhance intimacy while reducing discomfort
Ways to improve intimacy that are not focused solely on sexual intercourse
Restoring intimacy with sensate focused therapy
Goal is to build trust and intimacy within your relationship, helping you to give and receive pleasure
Each member of the couple takes turn being the giver and receiver of pleasurable touch
Occurs in phases:
Phase 1: Non-Genital Sensate Focus
Phase 2: Genital Sensate Focus
Phase 3: Penetrative Sensate Focus
Sample sensate exercise: the hand rub
Set a timer for 15 minutes
One partner should give the other partner a hand massage.
The partner giving the massage should focus on the experience of giving pleasure.
The receiver of the message should focus on receiving pleasure and providing feedback about what feels good.
After 15 minutes, switch roles
Sample sensate exercise: the gazing exercise
Set a timer for 5 minutes
Face each other and have a conversation
Focus on maintaining eye contact
Try to ask on another about your individual days
Keep the focus on each of you as individuals and as a couple
For more information about sensate focus therapy please visit these helpful links:
Helpful Resources on Cancer and Intimacy
The following are helpful articles, books and websites on sexual health and cancer.
Websites
Oncolink’s Guide to Sexuality During and After Treatment
A Woman’s Touch Vaginal Renewal Program (site also has adult toys, lubricants, books, and workshops etc.)
American Cancer Society: Sex and the Woman with Cancer
American Cancer Society: Treating Sexual Problems for Women with Cancer
Cure Today: Finding Sensuality After Cancer
Oncolink: Vaginal Dryness and Painful Intercourse
Livestrong: Female Sexual Health After Cancer
Livestrong: Male Sexual Health After Cancer
MD Anderson: Sexuality and Cancer
National Cervical Cancer Coalition: Sexuality and Cancer
Books
Sex and Cancer: Intimacy, Romance, and Love after Diagnosis and Treatment 1st Edition